British Neurological Surveillance Unit (BNSU)
The BNSU performs UK-wide surveillance for specific neurological disorders. Participating ordinary and associate members of the ABN, who are currently working in the UK, receive a monthly email listing the conditions being surveyed. If the ABN member has seen one of the conditions over the preceding month, they should indicate the number of patients seen via the form on the BNSU section of the ABN website, which will be followed up by the study's investigator(s). The work of the notifying doctor is kept to an absolute minimum. The email also contains a clickable hypertext link to be used by the email recipient if they have not seen any of the conditions under surveillance over the preceding month.
ABN members can view further information about conditions currently or previously surveyed by the BNSU in the password-protected area of the ABN website by clicking here. The conditions currently under surveillance are:
- Congenital cranial dysinnervation disorders, including Duane syndrome, Mobius syndrome, and congenital ptosis
- Lambert-Eaton myasthenic syndrome
- Familial Alzheimer's disease and familial frontotemporal dementia
- Neurological problems occurring within one month of influenza infection in adults
- Severe hypersensitivity reactions to anti-epileptic drugs
- Myoclonus dystonia syndrome
- Transient epileptic amnesia
- Drug-induced liver injury reactions to antiepileptic drugs
- Demyelination complicating anti-TNF therapy in inflammatory bowel disease (IBD) and other inflammatory disorders
Any ABN ordinary member can apply to survey a condition using the BNSU, using these guidelines and application form.
For further information please contact Dr Rustam Al-Shahi Salman, the current chair of the BNSU, via the ABN Office.