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Neurological complications of COVID-19 (confirmed or suspected)

Dr Ian Galea, University of Southampton
Dr Rachel Kneen, University of Liverpool
Dr Benedict Michael, University of Liverpool
Prof Sarah Pett, UCL
Dr Rhys Thomas, Newcastle University

Contact point:

To report a case click here



We are looking to collate the neurological complication of COVID-19.

The COVID-19 pandemic is an evolving national emergency in which a significant proportion of the population are expected to be infected. The experience of past pandemics, notably influenza subtype H1N1 in 1918 and 2009, suggests that neurological complications may occur. Though the proportion may be small, given the large number of infections the collective burden may be large.



The reporting neurologist will be sent a short case reporting form. Given the unprecedented strain the NHS is currently facing, this form has been kept purposely brief so as not to add to the workload of busy clinicians and staff-depleted teams, and is essentially a screening document. A minimum of information required to later identify the patient is requested, encrypted via a scrambling algorithm. Since no openly identifiable information is shared, consent is not required at this point. A similar strategy is already in use by the UK Renal Registry, for example.

At a later point, the local clinical research team linked to the reporting neurologist may be contacted and asked to either consent the patient or obtain assent from their significant other, using approved forms supplied by the central study team. Once consented, clinical details such as demographics, past medical history, symptoms, signs, test results, treatment, and progress will be gathered from the reporting neurologist or their team using a standardised case report form.

We have also partnered with the BPNA to identify cases under the age of 18y, the BNPA to identify neuropsychiatric complications, BASP to ensure we are notified of acute cerebrovascular presentations, and NACCS so that people primarily managed by neuro-intensivists are reported.

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Association of British Neurologists
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Telephone: +44 (0)20 7405 4060

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